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Safer Online Lives

Internet Use and Safety for People with Intellectual Disabilities

About the project

 

A computerThe internet and social media have become a big part of many people’s lives.

 

In this study adults with intellectual disabilities, and the people who support them, have been talking to us about how adults with intellectual disabilities use the internet and social media.

 

They have been sharing their stories with us, telling us about the positive things and opportunities people with intellectual disabilities have, when using the internet.

 

 

 

They have also been telling us about the negative parts of the internet and about what might stop or make things more difficult for people with intellectual disabilities to use the internet.

What did we do in the Safer Online Lives study:

 

1. We asked adults with intellectual disabilities to fill out a questionnaire about using the  internet.

We also asked family carers, safeguarding, and support staff to answer some questions about helping people with intellectual disabilities with using the internet.

 

2. We invited adults with intellectual disabilities to talk about their online experiences in more detail.

We also heard from carers and staff about how they support people with intellectual disabilities with being online.

 

3. We wanted to know more about how people with intellectual disabilities use social media. So, we asked them to tell us more about what they do on social media (Facebook, Twitter (X), and Instagram), and what part social media play in their lives.

 

4. We worked with the School of Computing at Kent University to develop a mobile app. We used the app to help us better understand how people with intellectual disabilities do things when online.

 

What did we find out in the Safer Online Lives study:

 

 

A computerMajority of adults with intellectual disabilities use the internet every day.

 

 

Majority of them use social media, like Facebook or Instagram.

 

 

Most adults with intellectual disabilities feel that the internet is risky. They are hearing a lot of frightening stories about online risks.

Carers and professionals are also worried about online risks.

 

 

There are some barriers that make it harder for adults with intellectual disabilities to get online – for example, not enough support and training.

 

But some people with intellectual disabilities are getting very positive support. This is empowering them to benefit from the online world!

 

 

People can do lots of great things online, like make friends, find out information and share their stories.

 

 

Support to go online safely, can help people with learning disabilities to feel more confident and independent.

 

 

 

The future is online! More and more things nowadays must be done through the internet. People with LD, and carers/staff need to be supported with things moving online.

 

Who is involved in the study:

A group of people

Project team

Dr Paraskevi (Vivi) Triantafyllopoulou (PI)

 

 

 

Professor Michelle McCarthy

 

 

 

Professor Shujun Li

 

 

 

Jessie Newsome

 

 

 

Dr Haiyue Yuan

 

 

 

 

Working with people with intellectual disabilities and other stakeholders

A group of people sharing ideas

The study is working with two advisory groups:

Our main advisory group consists of people with intellectual  disabilities who use the internet. They have helped us throughout the study in every step of the way. The study was co-produced with people with intellectual disabilities from the very start and people with intellectual disabilities were employed where possible, to provide their expertise.

The other advisory group is a group of staff and organisations that support people with intellectual disabilities. This includes paid and unpaid carers, as well as police, social workers, psychologists and more. They have also helped us throughout the study.

Project funder

National Institute for Health Research (NIHR) School of Social Care Research

Please note: This report is independent research by the National Institute for Health Research School for Social Care Research. The views expressed in this publication are those of the author(s) and not necessarily those of the NIHR SSCR, the National Institute for Health Research or the Department of Health and Social Care.

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Contact us

Get in touch with Dr Paraskevi Triantafyllopoulou:

Or contact the Safer Online Lives Research Team: